AFOs to the rescue!

On Tuesday we had our third appointment at the University of Iowa Children’s Hospital in Iowa City since finding out about Caedan’s Duchenne’s in October. We are so fortunate to have the hospital so close by! We have a 6 person staff that sees us each time we visit consisting of the main MD doctor, the MD nurse, the dietician, MDA representative, physical therapist and our social worker. During this visit, we had a few more stops. Caedan had a base line EKG and Echocardiogram done, both turned out great. Then we went to lunch and returned to the hospital for Ankle Foot Orthoses (AFOs). It made for a very long day, but Caedan was a trooper as always.
I have put together a storyboard from our trip down to the orthotics department. The first picture is from the Echo, the rest are at the ortho. I thought he would be scared since they had to make casts of his feet and legs but he was sooooo brave. He asked a lot of questions, and daddy sat by his side.

The purpose of the AFOs is to keep Caedan’s muscles stretched so he has the ability to use them longer. I am guessing this is the first of many trips to orthotics, but lets hope I am wrong.